THE ABLE LABEL: STORY BEHIND THE BRAND

This Parkinson’s Awareness Week, the Parkinson's community joined together to share the message: “Whoever you are and whatever you're going through, no one has to face Parkinson's alone”.

As Parkinson’s Awareness Week 2016 draws to a close, we remember how The Able Label was initially started with a very close link to Parkinson’s.

Founder Katie’s grandmother had Parkinson’s and Parkinson’s Dementia. As the degenerative disease progressed, she found daily living became more challenging. For most aspects of life, she was able to gain the right support to help her lead as normal a life as possible. This was not the case with clothing though.

Katie’s grandmother hated her grandfather helping her to dress. She wanted to maintain as much independence as possible and explained to Katie that when she received help dressing, she lost that as well as her dignity and this really upset her. She also loved clothes and took real pride in the way she dressed so sacrificing the way she looked was not an option.

Katie therefore spent time with her grandmother researching alternative solutions to make the dressing process easier whilst maintaining style. There was nothing available, which satisfied both the function and fashion she needed. Katie was a buyer for popular retailer White Stuff so set to work thinking of solutions to help her grandmother and the many other women in the same situation as her (not only with Parkinson’s but with anything that could make dressing a challenge from a frozen shoulder to having had a stroke) who did not want to and should not have to sacrifice fashion for function or function for fashion.

Katie's grandmother - inspiration for The Able Label clothing

With Katie’s grandmother in mind, clothes within The Able Label's range all consider three key elements in addition to looking stylish:

1.) PHYSICAL

• Reduced movement - fabrics used are all jersey, which has extra stretch making them easier to get on and more comfortable to wear. No styles dress overhead.

• Sensitive skin – fabrics all have a super soft finish, which feels great against skin. Seams are considerately placed and minimised to reduce discomfort

• Reduced fine motor skills and lack of strength – this meant fastenings become impossible so all clothes have touch closures like Velcro which are easier to manipulate. Read more on our Velcro used here.

• Fatigue – with no styles dressing overhead, fatigue is reduced

• Poor balance – wrap styles mean that the amount of balance required to dress is minimised. In particular, wrap skirts allow dressing without even taking a foot off the ground. This makes dressing safer and reduces risk of falls.

2.) COGNITIVE

• All styles have colour co-ordinated internals to act as triggers in aiding dressing for those who have cognitive difficulties. Lime is for left and red is for right and encourages the wearers to dress themselves the right way round and not back to front.

3.) ASSISTED

• Katie’s grandmother eventually needed full time care and had assisted dressing. Wrap designs made it easier for carers to dress her whilst she maintained her style.

Katie’s grandmother would often say to her, “if you can help just one other person in my situation, do all you can to help” - this still today inspires the team to create beautiful clothes all designed to make dressing easier.

So with the same joined up thinking as Parkinson’s Awareness Week, if you know anyone who could benefit from The Able Label’s easier dressing clothing, let them know there is now an option out there which could help them maintain independence, dignity and inspire confidence.

The Able Label can be found:

Website: www.theablelabel.com

Facebook: TheAbleLabel

Twitter: @theablelabel

The range is also stocked by Parkinson's UK and can be found by clicking on this Parkinson's UK adaptive clothing link.

THE FACTS ABOUT PARKINSON’S DISEASE: UP YOUR FRIENDLY WITH PARKINSON'S UK

One person every hour is diagnosed with Parkinson’s disease.

Like my Grandmother who was in her 70’s when diagnosed, most people get the disease aged over 50 however younger people can get it too. She is one of 127,000 people in the UK with Parkinson’s as it affects one person in 500.

Tragically, it is a progressive neurological condition, which means she is not going to get better. The disease will not kill her but it will mean that symptoms will only worsen over time.

Parkinson’s is caused when nerve cells inside the brain are killed causing a lack of the chemical, dopamine. Why these cells die is unclear but it can lead several symptoms which will vary from person to person. My Grandmother battles the following physical symptoms daily:      

·      Slowness of movement

·      Rigidity or stiffness, especially after she had stopped for a period of time.

·      Shuffling when she walks

·      Freezing mid way through tasks which could take up to half an hour to overcome

·      Problems sleeping, waking up in the middle of the night, wanting to get up to complete tasks she thought she had forgotten in the day or thinking someone was knocking at the door

·      Speech and communication problems came later on as the muscles in her neck weakened making her voice softer and words more difficult to get out

·      This also has lead to difficulty swallowing as she now can sadly no longer eat solids

Unlike most with Parkinson’s, she initially had no tremor, which we believe is partly why it took her so long to be diagnosed. Only later on, she acquired a twitch in her neck and slight shakes in her hands when she became more stressed.

She also faces mental symptoms, these include:

·      Anxiety as she would constantly worry about tasks she had not done

·      Frustration, predominantly caused through the physical symptoms

·      Dementia, which came later on and has lead to short-term memory problems. She is not alone with this as up to 80 per cent of those with Parkinson’s develop Parkinson’s dementia

·      Hallucination and delusions as she would see things which were not really there like holes in her clothes for example

Currently there are no cures. There are however treatments which can help to maintain quality of life. Drugs can help to restore the level of dopamine and physical therapies can help to manage Parkinson’s through the likes of physiotherapy, speech and language as well as occupational therapy.

My Grandmother gradually became less and less confident going out, aware things like paying at the supermarket checkout, took her longer much to the frustration of other shoppers. Parkinson’s UK empathises with this which is why their campaign this year centred around ‘up your friendly’. They are encouraging everyone to make small changes to their behaviour as it can make the biggest difference to someone living with Parkinson’s disease. This could include putting the kettle on, letting someone go first, holding the door open or like my Grandmother needed, just giving someone the extra time they need without becoming frustrated.

In our case, we are providing Parkinson’s friendly clothes that will be available later this year. Our beautiful clothes inspired by my Grandmother are specifically designed to make dressing easier considering things like stiffness, slowness of movement and shakes. All the things regular clothing fails to consider which as was the case with my Grandmother, can add to frustration and feelings of isolation.

Find out more on how we are helping those with Parkinson’s through our adaptive clothing collection on our website www.theablelabel.com or by emailing us directly at info@theablelabel.com

For Parkinson UK’s free and confidential helpline for further help and advice call 0808 800 0303.